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Authors
Black, Sarah K. P. https://orcid.org/0009-0003-1004-9828
Tully, Alexandra
Davis, Elizabeth A. https://orcid.org/0000-0003-4244-5473
Roberts, Alison
Binkowski, Sabrina https://orcid.org/0000-0002-4435-472X
Cromb, Leanne
Taplin, Craig https://orcid.org/0000-0001-8797-2926
Mellor, Brydie-Rose
Bebbington, Keely https://orcid.org/0000-0001-5427-0573
Haynes, Aveni https://orcid.org/0000-0001-9954-5016
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Funding
Funding for this research was provided by:
Channel 7 Telethon Trust (Channel 7 Telethon Trust Grant 2023)
Juvenile Diabetes Research Foundation Australia (3-SRA-2023-1291-M-N)
Juvenile Diabetes Research Foundation Australia (5-CDA-2024-1490-S-B)
Juvenile Diabetes Research Foundation Australia (number 5-SRA-2021-1088-M-X)
Perth Children's Hospital
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Article History
Received: 25 July 2025
Accepted: 1 December 2025
First Online: 3 February 2026
Acknowledgements
: Special thanks go to all participants from the type 1 diabetes community and HCPs from the Diabetes Clinical Service at Perth Children’s Hospital, as well as S. Broley (genetic counsellor). We would like to thank W. Chan She Ping-Delfos (Program Manager at the Children’s Diabetes Centre, The Kids Research Institute). Some of the data were presented as an abstract at the ANZSPED Annual Scientific Meeting and at the ATTD-Asia Diabetes Conference, both in 2024.
: The data that support the findings of this study are available from the corresponding author upon reasonable request.
: Open access funding provided by Perth Children's Hospital, WA Health Libraries Network Consortium. This research was supported by a Channel 7 Telethon Trust Grant (2023). The study team were also supported by Breakthrough T1D Australia (grant no. 5-SRA-2021-1088-M-X). AH is supported by a BreakthroughT1D Career Development Award (5-CDA-2024-1490-S-B). KB was supported by the Rebecca Davies Clinician Fellowship (grant no. 3-SRA-2023-1291-M-N) from Breakthrough T1D (formerly JDRF) Clinical Research Network, and is the recipient of the Commonwealth of Australia grant for Accelerated Research under the Medical Research Future Fund. The study sponsors/funders were not involved in the design of the study; the collection, analysis and interpretation of data; writing the report; and did not impose any restrictions regarding the publication of the report.
: The authors declare that there are no relationships or activities that might bias, or be perceived to bias, their work.
: AH, KB AR, AT acquired funding. AH, KB, AR, AT, SB, LC, SKPB, ED and CT designed the study. SKPB, KB, AH, SB, BM, AT and AR collected the study data. KB and AR drafted the analysis plan. SKPB, AR and AT performed the analyses. AH, KB, AR, AT, SB, LC, BM and SKPB contributed to data interpretation. SKPB wrote the manuscript. All authors reviewed and edited the manuscript and approved its submission. SKPB and AH are responsible for the integrity of the work as a whole and are the guarantors of this work.
