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Authors
Bartosik, Mikolaj
Prengel, Mascha
Delsmann, Julian
Oswald, Julia
Kornak, Uwe
Barvencik, Florian
Schinke, Thorsten
Amling, Michael
Oheim, Ralf https://orcid.org/0000-0001-9449-5013
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Funding
Funding for this research was provided by:
Deutsche Forschungsgemeinschaft (517063424)
Universitätsklinikum Hamburg-Eppendorf (UKE)
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Article History
Received: 25 July 2025
Accepted: 13 November 2025
First Online: 9 December 2025
Declarations
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: This retrospective study was performed in accordance with the local ethical guidelines (PV5364) and the Declaration of Helsinki. All patients gave written informed consent for retrospective analysis of the derived data from clinical routing measurements during their visit at our outpatients’ clinic.
: RO has served as a speaker and advisory board member for Kyowa Kirin, Inozyme, Ipsen, Mereo, Pharmacosmos and UCB and has received institutional research grants from Kyowa Kirin, UCB and Inozyme. FB has received speaker fees from Alexion, UCB, and Diasorin and has received institutional research grants from UCB and Alexion. All other authors declare that there is no conflict of interest.
