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Article History

Received: 30 January 2025

Accepted: 11 July 2025

First Online: 12 August 2025

Declarations

:

: Elena Tsourdi conducted clinical trials with Alexion, Amgen, Amolyt, Ascendis, Kyowa Kirin and UCB and has received honoraria for lectures or preparation of educational material from Alexion, Amgen, Ascendis Firma and UCB. Karin Amrein received speaker fees from Takeda in the past. Markus Ketteler provided research and clinical consultation for Shire (a Takeda company) and received speaker fees from Ascendis Firma. Tobias Vogelmann and Tino Schubert are owners and employees of LinkCare which received honoria by Ascendis Firma and Takeda. Heide Siggelkow participated in advisory boards for MSD, Lilly, Amgen, Servier, Takeda, UCB, Kyowa Kirin and received speaker fees by MSD, Lilly, Amgen, GSK, Servier, Takeda, Alexion, Kyowa Kirin, UCB, Sandoz, Sanofi Aventis. Research support: Takeda. Christian Meier participated in advisory boards for Alexion, Amgen, Ascendis Firma, Kyowa Kirin, UCB, and received speaker fees from Amgen, GedeonRichter and UCB. Michael C. Kreissl, and Annie Mathew state that they have no conflicts of interest with respect to the submitted manuscript.

: No approval of research ethics committees was required to accomplish the goals of this study.

: This article does not contain any studies with human participants or animals performed by any of the authors.

: All participants in the Delphi process are co-authors of this publication. By contributing to the development and refinement of the consensus statements, each author has provided informed consent for the use and publication of their input.