te Braake, E. https://orcid.org/0000-0001-7995-3258
Schriemer, R. https://orcid.org/0009-0006-2591-9971
Grünloh, C. https://orcid.org/0000-0003-2319-3186
Ahoud, S.
Asselberghs, T.
Bodelier, V.
Hansen, D.
Ophuis, C.
Wolkorte, R. https://orcid.org/0000-0002-9647-6753
Funding for this research was provided by:
ReumaNederland (Project number PB23-01-01)
ICMS (TOPFIT programme)
Article History
Received: 13 January 2025
Accepted: 19 March 2025
First Online: 6 May 2025
Declarations
:
: The authors have not used AI in this manuscript. All authors (EtB, RS, CG, SA, TA, VB, DH, RW) have no conflict of interest to declare.
: All respondents received information about the study at the start of the survey. To qualify for partaking in the survey participants needed to be: (1) 16 years or older, and (2) diagnosed with a rheumatic condition. To start filling in the survey, participants needed to give their digital informed consent before participating. The nature of this study does not require formal medical ethical approval. This was assessed by the Medical Research Ethics Committee (MREC) Oost-Nederland in terms of the Medical Research Involving Human Subjects Act (WMO) obligation (File number: 2023-16440). For both the survey and the collaboration with research partners, this study received ethical approval from the Ethical Board of the University of Twente (request number 230796). All procedures were in accordance with the Declaration of Helsinki and the Good Clinical Practice (GCP) guidelines.