Document is current
Any future updates will be listed below
-
Authors
Piper, Martha A. https://orcid.org/0009-0009-1245-7837
Tunks, Alice
Humfrey, Sean
Calderwood, Lucy
Tayabali, Shaista
Taylor, Sydnae
Kaul, Arvind
Dalby, Ellie
Ahmed, Shihab
Farrington, Sue
Pollak, Thomas A.
Sloan, Melanie
-
Funding
Funding for this research was provided by:
LUPUS UK (LUPUS UK)
The Lupus Trust (The Lupus Trust)
Vasculitis UK (Vasculitis UK)
National Institute for Health Research (National Institute for Health Research)
- License Information
-
More Information
Article History
Received: 1 August 2025
Accepted: 5 September 2025
First Online: 10 October 2025
Declarations
:
: MAP and AT received funding from The Lupus Trust. ST received funding from The Lupus Trust, Lupus UK and Vasculitis UK. SH is a volunteer manager at the Wren Project. MS receives funding for her research programme from the NIHR, The Lupus Trust, LUPUS UK, Vasculitis UK, and reports consultancy fees from Otoimmune. AK received speaker fees from Lilly and travel support from AbbVie for British Society for Rheumatology attendance. SF is the Chief Executive of SRUK. MS and TAP were partially supported by the National Institute for Health Research (NIHR). TAP receives consulting fees from Arialys Inc. The remaining authors have declared no conflicts of interest. The views expressed are those of the study participants and/or author(s) and not necessarily those of the NHS, the funders, the NIHR, or the Department of Health and Social Care.
: Ethical approval was obtained through the Cambridge Psychology Research Committee: PRE 2022.027. Informed consent was taken electronically at the start of the online surveys and recorded verbally on audio-recordings for interviews. The protocol and initial statistical analysis plan were pre-registered: https://osf.io/zrehm. A further SAP for this sub-study was pre-agreed before accessing the data.
