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Authors
Stein, Olivia A. https://orcid.org/0009-0001-1721-6575
Lee, Jennifer L. F. https://orcid.org/0000-0002-5501-0017
Vinet, Evelyne https://orcid.org/0000-0001-7727-5879
Mendel, Arielle https://orcid.org/0000-0001-9732-616X
Pineau, Christian A. https://orcid.org/0000-0002-4966-1526
Kalache, Fares
Grenier, Louis-Pierre
Mielczarek, Leanne
Bernatsky, Sasha https://orcid.org/0000-0002-9515-2802
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Funding
Funding for this research was provided by:
Singer Family Fund for SLE Research (Non-profit, fundraising)
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Article History
Received: 3 September 2025
Accepted: 9 January 2026
First Online: 22 January 2026
Declarations
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: The authors have no relevant financial or non-financial interests to disclose.
: The authors have none to declare.
: This study received ethics approval from the McGill University Institutional Review Board (IRB #A04-M29-06B); All participants provided written informed consent prior to participation. Participants consented to the recording of focus group discussions and the use of anonymized quotations in publications.
: An abstract related to the study appeared as a poster at the American College of Rheumatology Annual Scientific Meeting, held from October 24 to 29, 2025 in Chicago, Illinois, USA. See reference 6 for bibliographic information.
