Landfeldt, Erik http://orcid.org/0000-0002-5758-7151
Nikolenko, Nikoletta
Jimenez-Moreno, Cecilia
Cumming, Sarah
Monckton, Darren G.
Faber, Catharina G.
Merkies, Ingemar S. J.
Gorman, Grainne
Turner, Chris
Lochmüller, Hanns
Funding for this research was provided by:
The National Institute of Health Research (NIHR) under the RD-TRC programme
The Wyck Foundation
Article History
Received: 17 February 2020
Revised: 25 May 2020
Accepted: 1 June 2020
First Online: 15 June 2020
Compliance with ethical standards
:
: Dr. Landfeldt is an employee of ICON plc (Stockholm, Sweden), outside the submitted work. Dr. Monckton reports having a research contract with Newcastle University during the conduct of the study; personal fees from AMO Pharma, Vertex, Charles River, BridgeBio, Small molecule RNA, and personal fees for scientific advisory board membership from Triplet Therapeutics and LoQus23, outside the submitted work. Dr. Monckton is on the scientific advisory board of the Myotonic Dystrophy Foundation and is a scientific advisor to the Myotonic Dystrophy Support Group. Dr. Faber reports research support from the European Union’s Horizon 2020 research and innovation programme Marie Sklodowska-Curie grant for PAIN-Net, Molecule-to-man pain network (grant no. 721841), the European Union 7th Framework Programme (Grant no. 602273) for the PROPANE study, Prinses Beatrix Spierfonds, and Grifols and Lamepro for a trial on IVIg in small fibre neuropathy, outside the submitted work. Dr. Faber has participated in steering committees for studies in small fibre neuropathy of Biogen/Convergence and Vertex outside the submitted work. Dr. Merkies received funding for research from the Talecris Talents program, the GSB CIDP Foundation International, Princes Beatrix foundation, and from the European Union 7th Framework Programme (Grant no. 602273) outside the submitted work. Furthermore, a research foundation at the University of Maastricht received honoraria on behalf of Dr. Merkies for participation in steering committees of the Talecris ICE Study, LFB, CSL Behring, Novartis, Grifols, and Octapharma outside the submitted work. Dr. Merkies serves on the editorial board of the Journal of Peripheral Nervous system, is a member of the Inflammatory Neuropathy Consortium (INC), and member of the Peripheral Nerve Society. Dr. Turner reports financial support from the Biomedical Research Council and the National Brain Appeal. Dr. Lochmüller is an investigator of the Medical Research Council UK Centre for Neuromuscular Diseases (reference G1002274, grant ID 98482). The other authors report no conflicts of interest.