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Authors
Nguyen, Chi D. L.
Jimenez-Moreno, Aura Cecilia
Merker, Monika
Bowers, Charles Joseph
Nikolenko, Nikoletta
Hentschel, Andreas
Müntefering, Thomas
Isham, Angus
Ruck, Tobias
Vorgerd, Matthias
Dobelmann, Vera
Gourdon, Genevieve
Schara-Schmidt, Ulrike
Gangfuss, Andrea
Schröder, Charlotte
Sickmann, Albert
Gross, Claudia
Gorman, Grainne
Stenzel, Werner
Kollipara, Laxmikanth
Hathazi, Denisa
Spendiff, Sally
Gagnon, Cynthia
Preusse, Corinna
Duchesne, Elise
Lochmüller, Hanns
Roos, Andreas
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Funding
Funding for this research was provided by:
Ministerium für Innovation, Wissenschaft und Forschung des Landes Nordrhein-Westfalen
AFM-Téléthon (21644)
National Institute for Health Research Health Protection Research Unit (PD00402)
Canadian Institutes of Health Research (FDN-167281)
Canada Research Chairs (950-232279)
DGM
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Article History
Received: 3 October 2022
Revised: 15 February 2023
Accepted: 19 February 2023
First Online: 9 March 2023
Declarations
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: The authors declare that they have no conflict of interest. HL: consultancy and financial support for research projects and clinical trials from Amplos Biotechnology, AMO Pharma, Biogen, Desitin, Fulcrum Therapeutics, GW Pharma, KYE Pharmaceuticals, Milo Biotechnology, Pfizer, PTC Therapeutics, Hoffman-La Roche Limited, Sanofi-Genzyme, Santhera, Sarepta, Satellos and Ultragenyx. HL is the Editor-in-chief for the Journal of Neuromuscular Diseases (IOS Press).
: This study was approved by the local ethical review committee of the University Hospital Essen (Germany); (19-9011-BO).
