Aiello, Edoardo Nicolò
Solca, Federica
Greco, Lucia Catherine
Torre, Silvia
Carelli, Laura
Morelli, Claudia
Doretti, Alberto
Colombo, Eleonora
Messina, Stefano
Pain, Debora
Radici, Alice
Lizio, Andrea
Casiraghi, Jacopo
Cerri, Federica
Woolley, Susan
Murphy, Jennifer
Tremolizzo, Lucio
Appollonio, Ildebrando
Verde, Federico
Sansone, Valeria Ada
Lunetta, Christian
Silani, Vincenzo
Ticozzi, Nicola
Poletti, Barbara http://orcid.org/0000-0003-4398-2051
Funding for this research was provided by:
Ministero della Salute
Article History
Received: 28 March 2023
Revised: 22 April 2023
Accepted: 26 April 2023
First Online: 5 May 2023
Declarations
:
: V. S. received compensation for consulting services and/or speaking activities from AveXis, Cytokinetics, Italfarmaco, Liquidweb S.r.l., and Novartis Pharma AG, receives or has received research support from the Italian Ministry of Health, AriSLA, and E-Rare Joint Transnational Call. He is on the Editorial Board of <i>Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration</i>, <i>European Neurology</i>, <i>American Journal of Neurodegenerative Diseases</i>, <i>Frontiers in Neurology</i>. B.P. and L.C. received compensation for consulting services and/or speaking activities from Liquidweb S.r.l. B.P is Associate Editor for <i>Frontier in Neuroscience</i>. N. T. received compensation for consulting services from Amylyx Pharmaceuticals and Zambon Biotech SA. He is Associate Editor for Frontiers in Aging Neuroscience. C.L. received compensation for consulting services and/or speaking activities from Cytokinetics, Italfarmaco, and Mitsubishi Tanabe Pharma Europe. He is Associate Editor for <i>Frontiers in Neurology</i>. V.A.S. participates in Advisory Boards or teaching activities for Biogen, Roche, Avexis, PTC, Santhera, Sarepta, Dyne. S.W. receives licensing fees when the ALS Cognitive Behavioural Screen (ALS-CBS™) is used in pharmaceutical trials. J.M. is employed full time at Biogen; she does not receives compensations related to the ALS-CBS™. Remaining Authors have nothing to declare.
: participants provided informed consent and data were treated according to current regulations. This study was approved by the Ethics Committee of IRCCS Istituto Auxologico Italiano (I.D.: 2013_06_25), by the Ethics Committee of Milano Niguarda Area 3 (I.D.: 393-09062021) and by the Ethics Committee of Istituti Clinici Scientifici Maugeri IRCCS (I.D.: CE 2495-12012021).