Leighton, Danielle J. http://orcid.org/0000-0003-2015-7198
Ansari, Morad
Newton, Judith
Cleary, Elaine
Stephenson, Laura
Beswick, Emily
Carod Artal, Javier
Davenport, Richard
Duncan, Callum
Gorrie, George H.
Morrison, Ian
Swingler, Robert
Deary, Ian J.
Porteous, Mary
Chandran, Siddharthan
Pal, Suvankar
,
Bethell, Andrew
Byrne, Susan
Connor, Myles
Craig, Gillian
Dolezal, Ondrej
Flett, Moira
Gardiner, Louise
Gill, Jessica
Chau, Isaac
Hatrick, Janice
Johnson, Micheala
Lassak, Katja
Larraz, Juan
Lennox, Helen
MacDonald, Pauline
Marshall, Laura
McAleer, Dympna
McEleney, Alison
Millar, Kitty
Murrie, Louise
Perry, David
Saravanan, Gowri
Simpson, David
Stewart, Susan
Storey, Dorothy
Stott, Gill
Thompson, David
Thornton, Carol
Webber, Carolyn
Wong, Michael
Harris, Sarah
Prendergast, James
Russ, Tom
Taylor, Adele
Deary, Ian
Funding for this research was provided by:
Chief Scientist Office, Scottish Government Health and Social Care Directorate (CAF/MND/15/01)
Motor Neurone Disease Association (CAF/MND/15/01)
MND Scotland (CAF/MND/15/01)
Article History
Received: 7 December 2023
Revised: 9 May 2024
Accepted: 16 May 2024
First Online: 9 June 2024
Declarations
:
: The authors report no competing interests.
: The Scottish MND Register/CARE-MND Platform is approved by MREC/98/0/56 1989–2010, 10/MRE00/78 2011–2015, and the Scotland A Research Ethics Committee 15/SS/0126 2015 onwards. The Scottish MND DNA Bank and the Scottish Regenerative Neurology Tissue Bank are approved by MREC/98/0/56 1989–2010, 10/MRE00/77 2011 to 2013, 13/ES/0126 2013–2015, 15/ES/0094 2015-present. Ethical permission for the LBC1936 study protocol was obtained from the Multi-Centre Research Ethics Committee for Scotland (Wave 1: MREC/01/0/56), the Lothian Research Ethics Committee (Wave 1: LREC/2003/2/29), and the Scotland A Research Ethics Committee (Waves 2, 3,4 and 5: 07/MRE00/58). Ethical permission for the LBC1921 study protocol was obtained from the Lothian Research Ethics Committee (Wave 1: LREC/1998/4/183; Wave 2: LREC/2003/7/23; Wave 3: LREC1702/98/4/183), the Scotland A Research Ethics Committee (Waves 4 and 5: 10/MRE00/87).
: All participants provided informed consent to before contributing to the Scottish MND Register/CARE-MND Platform, Scottish MND DNA Bank and the Scottish Regenerative Neurology Tissue Bank and Lothian Birth Cohorts.