Tsantila, Fotini https://orcid.org/0000-0002-1229-6318
Rugulies, Reiner https://orcid.org/0000-0002-7752-131X
Coppens, Evelien https://orcid.org/0000-0003-3399-5828
De Witte, Hans https://orcid.org/0000-0002-6691-517X
Arensman, Ella https://orcid.org/0000-0003-0376-1203
Kahar, Abdulla https://orcid.org/0009-0005-9387-5598
Cerga-Pashoja, Arlinda https://orcid.org/0000-0002-7029-947X
Corcoran, Paul https://orcid.org/0000-0003-1201-7136
De Winter, Lars https://orcid.org/0000-0002-0523-3204
Greiner, Birgit https://orcid.org/0000-0002-2749-6662
Griffin, Eve https://orcid.org/0000-0003-0249-6428
Hogg, Bridget https://orcid.org/0000-0002-2405-0593
Leduc, Caleb https://orcid.org/0000-0003-1140-0184
Leduc, Mallorie https://orcid.org/0000-0001-5104-4861
Maxwell, Margaret https://orcid.org/0000-0003-3318-9500
Reich, Hanna https://orcid.org/0000-0002-9577-1144
Ross, Victoria https://orcid.org/0000-0002-6768-1205
Van Audenhove, Chantal https://orcid.org/0000-0002-5504-5439
Aust, Birgit
,
Abula, Kahar
Amann, Benedikt
Cox, Laura
Creswell-Smith, Johanna
Cully, Grace
Alessandro, Luigia D
Davey, Grace
Dooyoung, Kim
Doukani, Asmae
Dushaj, Arilda
Fanaj, Naim
Hackel, Stefan
Hegerl, Ulrich
Holland, Carolyn
Mathieu, Sharna
Moreno-Alcazar, Ana
Mulcahy, Karen
Connor, Ainslie O.
Orchard, Wendy
Paterson, Charlotte
Purebl, György
Qirjako, Gentiana
Rapeli, Saara
Sanches, Sarita
Szekely, Andras
Weeghel, Jaap
Wahlbeck, Kristian
Zsak, Eva
Funding for this research was provided by:
Advocate Children’s Heart Institute Research Advisory Council
Article History
Received: 4 March 2024
Accepted: 21 July 2024
First Online: 20 August 2024
Declarations
:
: The authors declare no conflict of interest.
: The study was conducted according to the guidelines of the Declaration of Helsinki, and approved by the Clinical Research Ethics Committee of the Cork Teaching Hospitals (Ireland; reference number ECM 4 (bb) 10/11/2020), Griffith University Research Human Research Ethics Committee (Australia; reference number 2020/842), Ethical Review Board of The Finnish Institute for Health and Welfare (Finland; reference number THL/5316/6.02.01/2020); Egészségügyi Tudományos Tanács, Tudományos és Kutatásetikai Bizottság (Hungary; reference number iV/10156–3/2020/EKU); Professional Ethics Commission of Hospital and University Clinical Service of Kosovo (Kosovo; reference number 2550); Comité de Ética de la Investigación con medicamentos del Parc de Salut MAR (Spain; reference number 2019/8872/l); The Medical Research Ethics Committee Utrecht (The Netherlands; reference number SL/avd/21/500074); Ethikkommission des Fachbereichs Medizin der Goethe-Universität Frankfurt am Main (Germany; reference number 20–1025); and National Ethics Committee, Albania (Albania; reference number 98.8).
: All participants received information about the study and provided informed consent before starting the survey.