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Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus

Crossref DOI link: https://doi.org/10.1007/s00431-023-05131-9

Published Online: 2023-08-11

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Bray, Lucy https://orcid.org/0000-0001-8414-3233
Carter, Bernie https://orcid.org/0000-0001-5226-9878
Kiernan, Joann https://orcid.org/0000-0001-7574-8716
Horowicz, Ed https://orcid.org/0000-0002-9549-4933
Dixon, Katie

Ridley, James https://orcid.org/0000-0001-6337-9597
Robinson, Carol https://orcid.org/0000-0001-7363-9735
Simmons, Anna

Craske, Jennie https://orcid.org/0000-0003-0506-1569
Sinha, Stephanie

Morton, Liza https://orcid.org/0000-0001-5560-7561
Nafria, Begonya https://orcid.org/0000-0002-4494-3663
Forsner, Maria https://orcid.org/0000-0003-1169-2172
Rullander, Anna-Clara https://orcid.org/0000-0002-3414-5481
Nilsson, Stefan https://orcid.org/0000-0002-8847-9559
Darcy, Laura

Karlsson, Katarina https://orcid.org/0000-0003-4080-6677
Hubbuck, Cath

Brenner, Maria https://orcid.org/0000-0001-8779-5288
Spencer-Little, Sian

Evans, Kath

Rowland, Andrew https://orcid.org/0000-0001-9564-0032
Hilliard, Carol https://orcid.org/0000-0003-3111-0731
Preston, Jennifer https://orcid.org/0000-0003-4800-234X
Leroy, Piet L.

Roland, Damian https://orcid.org/0000-0001-9334-5144
Booth, Lisa https://orcid.org/0000-0001-7957-6501
Davies, Jean

Saron, Holly https://orcid.org/0000-0001-7563-3409
Mansson, Marie Edwinson

Cox, Ann https://orcid.org/0000-0002-8399-8050
Ford, Karen https://orcid.org/0000-0003-2834-721X
Campbell, Steven

Blamires, Julie https://orcid.org/0000-0002-8515-1769
Dickinson, Annette https://orcid.org/0000-0001-7586-4872
Neufeld, Michael

Peck, Blake https://orcid.org/0000-0002-2444-9780
de Avila, Marla https://orcid.org/0000-0002-6652-4427
Feeg, Veronica https://orcid.org/0000-0002-7113-9814
Mediani, Henny Suzana https://orcid.org/0000-0001-6960-3692
Atout, Maha https://orcid.org/0000-0002-6290-9100
Majamanda, Maureen D. https://orcid.org/0000-0001-8886-3158
North, Natasha https://orcid.org/0000-0001-5317-8919
Chambers, Christine https://orcid.org/0000-0002-7138-916X
Robichaud, Fanny
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Text and Data Mining valid from 2023-08-11

Version of Record valid from 2023-08-11
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Article History

Received: 15 May 2023

Revised: 23 May 2023

Accepted: 12 June 2023

First Online: 11 August 2023

Declarations

:

: This study was performed in line with the principles of the Declaration of Helsinki. Approval was granted by the Ethics Committee of Edge Hill University, UK (ETH2021-0261), Federation University, Australia (A21-157), Brazil (CAAE 53331321.5.0000.5411 and Opinion No 5.159.191), Spain (review was not deemed necessary by the research institute’s ethics committee as this project did not entail any direct medical intervention to children) and Sweden (Swedish Ethical Review Authority 2022-01380-01).

: Informed consent was obtained from all individual participants included in phase 3 of the study. For the children and young people involved in the research element (Phase 3) informed consent was obtained from the parents by them ticking a box on the survey before allowing their child to enter their views.

: The authors have no relevant financial or non-financial interests to disclose.

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