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Authors
van den Brink, Vera C.
Kleimeier, Lotte E. R.
Leenders, Erika K. S. M.
Klein, Willemijn M.
de Boode, Willem P.
Fuijkschot, Joris
Vrancken, Sabine L. A. G.
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Funding
Funding for this research was provided by:
For Wis(h)dom Foundation (FWF/2022/1330, FWF/2022/1330)
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Article History
Received: 17 June 2025
Revised: 26 July 2025
Accepted: 29 July 2025
First Online: 21 August 2025
Declarations
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: This series was conducted in accordance with the principles of the Declaration of Helsinki, Dutch ethical standards, and applicable regulatory requirements. It forms part of a prospective observational study for which the Dutch Medical Ethical Commission granted a waiver under the Dutch Medical Research Involving Human Subjects Act (WMO; case number 2023–16807).
: Written informed consent was obtained from the parents or legal guardians. The authors affirm that human research participants provided informed consent for publication of the images in Figs. and .
: All authors have no relevant financial interests to disclose. W. P. de Boode is president of the European Society of Pediatric Research (ESPR). All other authors have no non-financial interests to disclose.J. Fuijkschot and W.M. Klein are part of the European Reference Network for Rare Multisystemic Vascular Disease. E.K.S.M. Leenders is member of the European Reference Network on Rare Congenital Malformations and Rare Intellectual Disability ERN-ITHACA. W. P. de Boode is president of the European Society of Pediatric Research (ESPR).All other authors have no non-financial interests to disclose.
