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Authors
McTiernan, Nina
Tranebjærg, Lisbeth
Bjørheim, Anna S.
Hogue, Jacob S.
Wilson, William G.
Schmidt, Berkley
Boerrigter, Melissa M.
Nybo, Maja L.
Smeland, Marie F.
Tümer, Zeynep
Arnesen, Thomas https://orcid.org/0000-0002-3005-147X
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Funding
Funding for this research was provided by:
Norges Forskningsråd (249843)
Kreftforeningen (171752—PR-2009-0222)
Helse Vest (F-12540)
University of Bergen
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Article History
Received: 2 November 2021
Accepted: 23 December 2021
First Online: 17 January 2022
Declarations
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: The authors have no relevant financial or non-financial interests to disclose.
: The study was conducted in accordance with the principles of the Declaration of Helsinki. The study was approved by the IRBs at the Madigan Army Medical Center (#217122) for family 1, National Committee on Health Research Ethics (protocol nr. CVK-1302181) for family 2, and University of Virginia Health System for family 3 and 4. The next-generation sequencing panel of family 5 was performed in a clinical diagnostic setting.
: Written informed consent was obtained from adult participants and legal guardians of child participants. The investigators have adhered to the policies for protection of human subjects as prescribed in 45 CFR 46.
: A full written consent for publication including patient photographs, was provided by the parents.
