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Authors
Mulder, Jaap https://orcid.org/0000-0001-5404-9203
Kohl, Stefan https://orcid.org/0000-0001-9600-8231
Fontanella, Federica
Hilger, Alina C. https://orcid.org/0000-0002-0354-7584
Reutter, Heiko https://orcid.org/0000-0002-3591-5265
Stein, Raimund https://orcid.org/0000-0002-3217-5089
Weber, Eva C. https://orcid.org/0000-0002-6633-8464
Westland, Rik https://orcid.org/0000-0003-4960-4078
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Article History
Received: 16 June 2025
Revised: 21 August 2025
Accepted: 22 September 2025
First Online: 13 November 2025
Declarations
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: All authors are affiliated with different German and Dutch University Medical Centers, both where vesico-amniotic shunting for fetuses with cLUTO is currently performed and where it is not. These centers are part of the European Rare Kidney Disease Reference Network (ERKNet). They have been trained in different regions worldwide (incl. North-America) and are actively involved in global research collaborations. ECW designed a currently ongoing, prospective, and multidisciplinary trial on early diagnosis and treatment of fetuses with cLUTO (IUS1st, DRKS00017779) that includes patients from Germany, The Netherlands, Austria, and Uruguay. We here aim to present an unbiased, global, and multidisciplinary perspective on the current and future clinical management of cLUTO. SK is a board member of the ERKNet Working group on CAKUT and Ciliopathies. RW and ACH are board members of the Working Group on CAKUT, urinary tract infection, and bladder dysfunction of the European Society of Pediatric Nephrology (ESPN). RW and JM are members of the NL research consortium Kidnie, which is supported by the Dutch Kidney Foundation.
