Mendonça, Kyle
Hou, Sharon H. J.
Wright, Holly
Henry, Brianna
Drummond, Rachelle
Forbes, Caitlin
Rahamatullah, Iqra
Duong, Jenny
Erker, Craig
Taccone, Michael S.
Sutherland, Liam
Nathan, Paul C.
Spavor, Maria
Goddard, Karen
Reynolds, Kathleen
Schulte, Fiona S. M. https://orcid.org/0000-0002-3076-9676
Funding for this research was provided by:
Strategy for Patient-Oriented Research (425051)
Alberta Children's Hospital Research Institute
Kids Cancer Care
Arnie Charbonneau Cancer Institute, University of Calgary
Article History
Received: 31 August 2025
Accepted: 15 January 2026
First Online: 28 January 2026
Declarations
:
: All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards. The study was approved by the Health Research Ethics Board of Alberta – Cancer Committee (HREBA.CC-20-0248).
: Written informed consent was obtained from all individual participants included in the study.
: The authors declare no competing interests.
: We engaged in reflexivity throughout data analysis and interpretation of results to foster self-awareness, rigor, and transparency of our research process. We actively examined the influences of our positionality, cultural worldviews, and life experiences, on the analysis and interpretations of data collected. The analysis team was comprised of five members: SH, RD, BH, KC, HW, overseen by FS. SH is a registered psychologist and postdoctoral fellow that specializes in clinical child and adolescent psychology and pediatric health. SH’s research and clinical interests are on advancing diversity and health equity in children’s health and well-being and those of their families. SH’s work is largely influenced by her own immigration experience and exposure to cultural diversity over her life. This study was led by SH. RD is a master’s student with training in health policy, and psychosocial functioning among adolescent and young adult survivors of childhood cancer. She is also a survivor of childhood cancer and believes that leveraging community-based research methods is the best way to inform our healthcare system of the needs of individuals. BH has a BSc in Psychology and is a research coordinator. Her interests lie in improving psychosocial outcomes for those living with or beyond cancer through patient-oriented research. HW is a medical student who holds an undergraduate degree in kinesiology with a focus on psychology, and neuroscience. Her research interests focus on improving the quality of life of individuals with chronic diseases, drawing inspiration from her work with children with cancer. KM is a Pediatric hematologist/oncologist, providing patient care for children and youth who are living with or survivors of cancer. He has an interest in optimizing patient experience through qualitative methods and narrative medicine. FS is an associate professor and a leader in psychosocial oncology. FS is the principal investigator of this study and oversaw the study process.