Brédart, Anne https://orcid.org/0000-0002-1864-5371
Kop, Jean-Luc https://orcid.org/0000-0002-6963-8411
Shamieh, Omar https://orcid.org/0000-0002-3635-8624
Fox, Louis https://orcid.org/0000-0002-8280-1797
Alrjowb, Waleed https://orcid.org/0000-0001-6098-9891
Conroy, Thierry https://orcid.org/0000-0001-7548-284X
Turhal, Nazim Serdar https://orcid.org/0000-0002-1013-5676
Arraras, Ignacio Juan https://orcid.org/0000-0002-4415-2570
Bultijnck, Renée https://orcid.org/0000-0003-4122-2323
Harle, Amélie https://orcid.org/0000-0001-7743-9626
Hemelrijck, Mieke Van https://orcid.org/0000-0002-7317-0858
Pinto, Eleonora https://orcid.org/0000-0001-5404-5958
Roth, Eric https://orcid.org/0000-0003-1909-2462
Ioannidis, Georgios https://orcid.org/0000-0003-2535-7279
Costantini, Anna https://orcid.org/0000-0002-5955-5209
Chalk, Tara https://orcid.org/0000-0003-2964-1891
Young, Teresa https://orcid.org/0000-0003-0367-2980
Rohde, Gudrun https://orcid.org/0000-0002-8538-7237
Ishiki, Hiroto https://orcid.org/0000-0002-0800-2161
Kikawa, Yuichiro https://orcid.org/0000-0002-3852-5991
Schmidt, Heike https://orcid.org/0000-0002-0922-4022
Vassiliou, Vassilios
Shayler, Stephanie
Marchal, Frédéric https://orcid.org/0000-0002-7685-6070
Lehmann, Jens https://orcid.org/0000-0002-4670-7517
Funding for this research was provided by:
European Organisation for Research and Treatment of Cancer (007/2018)
Article History
Received: 23 July 2025
Accepted: 5 February 2026
First Online: 13 February 2026
Declarations
:
: This study was approved by the EORTC QLG and was coordinated at Institut Curie (France). It was performed according to the rules of the Helsinki Declaration and received ethical approval from the coordinating centre ( Ethical approval “ Committee for the Protection of Persons North-West 1 ( Comité de Protection des Personnes)” Nord-Ouest 1, Rouen University, Rouen, France, N° 19.07.15.58930, approval received on the 15/11/2019) and from each participating center according to national and regional requirements. All patients were duly informed of the study protocol and provided their consent for participation in the study. The study is registered in ClinicalTrials.gov under ID: NCT05989191, August 2, 2023.
: Not applicable.
: The authors declare no competing interests.
: Patients and patient partners were involved in the study by providing inputs concerning the content, format and burden of the questionnaires in previous stages of the questionnaires’ development. They provided insights for interpreting this study finding. These will be publicly available through the website of the European Organization for Research and Treatment of Cancer – Quality of Life Group.