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Authors
Morison, Lottie D. https://orcid.org/0000-0003-2822-6522
Summerfield, Nuala
Bradley, Dana
van Bon, Bregje W. https://orcid.org/0000-0003-2234-0105
Morgan, Angela T. https://orcid.org/0000-0003-1147-7405
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Funding
Funding for this research was provided by:
University of Melbourne
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Article History
Received: 30 January 2025
Accepted: 6 August 2025
First Online: 27 August 2025
Declarations
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: Ethics approval was obtained from the Royal Children’s Hospital Human Research Ethics Committee (HREC 37353 A). All caregivers provided informed consent.
: Nuala Summerfield and Dana Bradley are on the Board of Trustees, and Bregje van Bon is on the Scientific and Medical Advisory Board for the Schinzel-Giedion Syndrome Foundation. The other authors have no relevant financial or non-financial interests to disclose.
