Ewer, E. R. http://orcid.org/0009-0001-0038-5612
De Pauw, R. http://orcid.org/0000-0002-4242-9062
Kazkazk, H.
Ninis, N.
Rowe, P.
Simmonds, J. V. http://orcid.org/0000-0003-0930-4193
De Wandele, I. http://orcid.org/0000-0003-0377-0150
Funding for this research was provided by:
Ehlers-Danlos Society (Spring Microgrants 2020, The Ehlers-Danlos Society 2023 Mirco Grant Round)
Private Physiotherapy Education Fund (Scheme A2, grant 388)
Association of Paediatric Chartered Physiotherapists (APCP research bursary)
Article History
Received: 26 April 2024
Revised: 11 July 2024
Accepted: 14 July 2024
First Online: 31 July 2024
Declarations
:
: None.
: Ethical approval was granted by the University College London Research Ethics Committee for all research projects.
: Informed consent was gained from all participants prior to accessing the questionnaire.
: Permission was granted for use of all comparator outcome measures by the creators of the tools for use within this research.