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Article History

Received: 29 March 2021

Accepted: 12 May 2022

First Online: 19 October 2022

Declarations

:

: I. Flint, A. Meunier, and Dr L. Longworth are employees at PHMR. PHMR received financial support from Arvelle Therapeutics GmbH for the work, including the development, administration and data collection of the online survey, development of the mapping algorithms and preparation of the manuscript. J. Medjedovic; E. Drogon O’Flaherty; N. Savic and E. Alvarez-Baron are full-time employees of Arvelle Therapeutics GmbH who funded the work. K. Thangavelu of MeDaStats LLC is a consultant statistician to Arvelle Therapeutics GmbH.

: The study protocol and survey materials were approved by an independent ethical reviewer prior to the start of the interviews. The research ethics expert was working under the auspices of the Association of Research Managers and Administrators ().

: Before the respondent started the online survey, an information sheet was provided which included a breakdown of each study component and explained why the individual’s input was important for the study’s success; how the data would be managed; and their data protection rights. Following this, participants were issued an electronic informed consent form which they had to read and agree to before proceeding to the survey. Individuals who did not provide consent at this stage were unable to proceed to the survey.

: Before the respondent started the survey, an information sheet was provided which informed them of the potential use of anonymised data for publication in medical journals, conference presentations or which would be provided to health care decision makers. All participants provided informed consent.