Document is current

Article History

Received: 10 June 2025

Accepted: 13 June 2025

First Online: 12 July 2025

Declarations

:

: Nicholas L. Hartog reports receipt of consulting fees from Pharming Healthcare, Inc., and Amgen and speaker fees from X4 Pharmaceuticals, ADMA Biologics, Inc., Amgen, Takeda, and Pharming Healthcare, Inc. Eveline Y. Wu reports receipt of consulting fees and payment for speaker bureaus from Pharming Healthcare, Inc. Nicholas L. Rider reports receiving grants or contracts unrelated to this work from the National Institutes of Health/National Institute of Allergy and Infectious Diseases, Centers for Disease Control and Prevention via the Jeffrey Modell Foundation, and Takeda; receiving royalties or licenses from Wolters Kluwer; receiving consulting and speaker fees for serving on advisory boards from Pharming Healthcare, Inc., Takeda, X4 Pharmaceuticals, and Grifols and for serving on a steering committee for Pharming Healthcare, Inc.; receiving support for attending meetings from Takeda, Pharming Healthcare, Inc., and Grifols; and for support in attending meetings and/or travel (as a speaker) for Takeda and Grifols. Yang Meng is an employee of Lumanity, which received consulting fees from Pharming Healthcare, Inc. Saurabh Aggarwal is an employee of NOVEL Health Strategies and has received consulting fees from Pharming Healthcare, Inc. Brian Hartline, Philippe Adams, and Amanda Harrington are employees of Pharming Healthcare, Inc.

: This article is based on clinical expert survey data and publicly available cost information and does not contain any new studies with human participants or animals performed by any of the authors.