Sharp, Stephanie
Williams, Linford
Yashar, Beverly
Mohnach, Lauren
Fitzgerald, J. Thomas
Ernst, Michelle M.
Schafer-Kalkhoff, Tara
Gomez-Lobo, Veronica
Sandberg, David E. https://orcid.org/0000-0002-7389-8283
Funding for this research was provided by:
National Institute of Child Health and Human Development (R01 HD093450)
Article History
Received: 28 August 2022
Revised: 5 September 2025
Accepted: 8 September 2025
First Online: 25 November 2025
Declarations
:
: DES is an advisory board member of Accord Alliance, a nonprofit convener of stakeholders interested in improving health care delivery for patients and families affected by DSD. No other conflicts or competing interests to report.
: The study protocol was approved by the respective medical centers’ institutional review boards. Written informed consent was obtained from a parent/caregiver and assent from the participating youth.