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Assessing Psychological Harms on Parents and Primary Caregivers of Children Living with a Rare Disease: A Systematic Review of the Scope and Validity of Surveys Utilized

Crossref DOI link: https://doi.org/10.1007/s10567-025-00533-7

Published Online: 2025-06-30

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Bull, Lochlan J. https://orcid.org/0000-0001-9613-4983
Eslick, Guy D. https://orcid.org/0000-0002-0098-1705
Teutsch, Suzy M. https://orcid.org/0000-0003-1902-2173
Elliott, Elizabeth J. https://orcid.org/0000-0002-6501-5487
Funding

Funding for this research was provided by:

Australian Government Department of Health and Aged Care (Health/D24-1585167, Health/D24-1585167)

University of Sydney
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Text and Data Mining valid from 2025-06-30

Version of Record valid from 2025-06-30
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Article History

Accepted: 15 June 2025

First Online: 30 June 2025

Declarations

:

: The authors have no relevant financial or non-financial conflicts of interests to disclose.

: Not applicable.

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