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Authors
Fenning, Rachel M. https://orcid.org/0000-0003-4688-0499
Butter, Eric M.
Norris, Megan
Chan, James
Macklin, Eric A.
McKinnon-Bermingham, Kelly
Albright, Charles
Stephenson, Kevin G.
Scherr, Jessica
Moffitt, Jacquelyn
Hess, Amy
Steinberg-Epstein, Robin
Kuhlthau, Karen A.
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Funding
Funding for this research was provided by:
Health Resources and Services Administration (UA3 MC11054)
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Article History
Accepted: 20 June 2022
First Online: 14 July 2022
Declarations
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: The authors declare that they have no conflicts of interest that would influence this research. Dr. Macklin reported serving on advisory boards for Biogen, Cerevance, and Stoparkinson Healthcare Systems, serving on data monitoring boards for Novartis and Takeda Pharmaceutical, and receipt by his institution of research funds on his behalf from Amylyx Pharmaceuticals, Biohaven Pharmaceuticals, Clene Nanomedicine, GlaxoSmithKline, Mitsubishi Tanabe Pharma America, Prilenia Therapeutics, Ra Pharmaceuticals, and the National Institutes of Health.
: All procedures performed in this study involving human participants were in accordance with the ethical standards of the institutional research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
: Informed consent was obtained from all families included in the study.
