Lefevre, Leïla
Paccoud, Olivier
Neven, Bénédicte
Bougnoux, Marie-Elisabeth
Alligon, Mickaël
Bruneau, Julie
Fischer, Alain
Moshous, Despina
Bustamante, Jacinta
Picard, Capucine
Poiree, Sylvain
Guery, Romain
Castelle, Martin
Suarez, Felipe
Marcais, Ambroise
Cheminant, Morgane
Rouzaud, Claire
Hermoso, Dea Garcia
Salvator, Hélène
Catherinot, Emilie
Pilmis, Benoit
Luca, Luminita
Brion, Jean-Paul
Revest, Matthieu
Gandemer, Virginie
Lelievre, Lucie
Alvarez, Muriel
Conrad, Anne
Fouyssac, Fanny
Gaud, Catherine
Blumental, Sophie
Blanche, Stéphane
Lortholary, Olivier
Mahlaoui, Nizar
Lanternier, Fanny
Article History
Received: 23 September 2024
Accepted: 16 June 2025
First Online: 6 November 2025
Declarations
:
: Written and informed consent was obtained from patients and/or their legal guardians by the attending clinician upon enrollment in the CEREDIH registry. Deceased and lost-to-follow-up patients are anonymously registered in the CEREDIH data bank. All data collection and analysis procedures were approved by the appropriate national and local regulatory authorities.The database was approved by the French National Data Protection Commission (Commission Nationale Informatique et Libertes, Reference n°1,165,361, dated 28/04/2006). The studyprocedures (analysis of the CEREDIH registry) were approved by the French National Consultative Committee on Data Processing in Healthcare Research (Comite Consultatif sur le Traitement de l’Information en Matiere de Recherche dans le Domaine de la Sante; reference 06.327; dated September 7, 2006), see [ ].
: The authors declare no competing interests.