Document is current

Article History

Received: 28 August 2025

Accepted: 14 December 2025

First Online: 26 December 2025

Declarations

:

: The authors declare no conflict of interest.

: In autoethnographic research, where personal experience forms both the subject and the lens of inquiry, ethical considerations are central. Following Løgstrup’s ( ) reflections on the ethical demand in human relationships, the researcher’s vulnerability becomes a space for ethical engagement and responsibility. The first author’s embodied experience of living with myasthenia gravis is intertwined with professional dialogue and reflection with the co-author, a neurologist. This collaboration has ensured that the personal narrative is articulated not as self-exposure but as a meaningful contribution to the understanding of quality of life in chronic illness. Although no other participants were involved and no formal ethical approval was required, written informed consent was obtained from the author (MM). The process has been guided by continuous reflexive dialogue, addressing questions of how the personal can be shared in a research context without becoming private, and how it can serve as an ethical and epistemic entry point into broader phenomenological and clinical insight.