Article History
Accepted: 8 July 2022
First Online: 22 July 2022
Declarations
:
: RH has received a conference grant from Recordati Rare Diseases UK Ltd. NK has received honoraria from Pfizer, Ipsen, HRA Pharma and Recordati Rare Diseases for lectures, research funding from Pfizer, Ipsen and Shire and has served as a member in Scientific Advisory Boards for Pfizer, Ipsen, Recordati Rare Diseases.