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Authors
Varni, James W.
Nutakki, Kavitha
Swigonski, Nancy L.
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Funding
Funding for this research was provided by:
Neurofibromatosis Therapeutic Acceleration Program (IN 46202-2915)
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Article History
Accepted: 14 November 2018
First Online: 21 November 2018
Compliance with ethical standards
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: Dr. Varni holds the copyright and the trademark for the PedsQL™ and receives financial compensation from the Mapi Research Trust, which is a non-profit research institute that charges distribution fees to for-profit companies that use the Pediatric Quality of Life Inventory™. The other authors report no competing interests related to this study.
: Parental informed consent and patient assent/consent (when age appropriate) were obtained from all participating families included in the study.
: The research protocol for the field test study was approved by the Institutional Review Board at Indiana University, Indianapolis. All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional research committees.
