White, Michelle K.
Leffler, Mindy
Rychlec, Kaitlin
Jones, Chris
McSherry, Christine
Walker, Linsey
Kosinski, Mark
Funding for this research was provided by:
Sarepta Therapeutics, Inc.
Article History
Accepted: 3 July 2019
First Online: 13 July 2019
Compliance with ethical standards
:
: MKW, KR, and MK are full-time employees of Optum and received research funding from Sarepta Therapeutics, Inc. to conduct the study. ML and CM are full-time employees of Casimir LLC and received research funding from Sarepta Therapeutics, Inc. to conduct the study. CJ is a full-time employee of CJ Jones Strategy & Communications, Inc. and a shareholder in iTakeControl Health Inc. and received research funding from Sarepta Therapeutics, Inc. to conduct a study in parallel with the research described in this publication. LW is a full-time employee of the study sponsor, Sarepta Therapeutics, Inc. and owns stock in the company.
: All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards.
: The caregiver interview informed consent form, protocol, and discussion guide were approved by the New England Independent Review Board (IRB#120170139). All caregivers who participated in the qualitative interviews provided written consent.