Powell, Philip A. https://orcid.org/0000-0003-1169-3431
Carlton, Jill
Funding for this research was provided by:
Duchenne UK (Project HERCULES funding stream)
Article History
Accepted: 19 August 2022
First Online: 1 September 2022
Declarations
:
: P.A. Powell and J. Carlton received research funding from Project HERCULES (via Duchenne UK) to develop a new preference-based patient-reported outcome measure for quality of life in DMD.
: This study was performed in line with the principles of the Declaration of Helsinki. Approval was granted from a Research Ethics Committee of the UK National Health Service (NHS; REC reference: 18/SW/0055).
: Written informed consent was obtained from all participants included in the study.
: All participants consented to their anonymised data being used to support a publication, as detailed in an Information Sheet.