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Authors
Nematollahi, Shahrzad https://orcid.org/0000-0003-1248-7306
Rampakakis, Emmanouil
Amara, Michael
Hamdy, Reggie C.
Rauch, Frank
Hyer, Lauren C.
James, Michelle A.
Altiok, Haluk
Raney, Ellen
Pellett, Jonathan
Mielke, Cary
Nossov, Sarah B.
Tavukcu, Sena
Giampietro, Philip F.
Dahan-Oliel, Noémi https://orcid.org/0000-0001-8567-7173
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Article History
Accepted: 4 October 2024
First Online: 22 October 2024
Declarations
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: The authors have no competing interests to declare that are relevant to the content of this article.
: Data was extracted from a multisite North American registry for children with AMC across eight hospital sites []. Administrative approval was obtained from the Department of Medical Research at Shriners’ Children in Canada (CAN1903) and from the Shriners’ Children partner sites in Chicago (Illinois), Greenville (South Carolina), Northern California, Portland (Oregon), Philadelphia (PA), Honolulu (Hawaii), and Shreveport (Louisiana). Approval for the lead site in Canada was obtained from the McGill University Faculty of Medicine Institutional Review Board (IRB) (A08-M30-19B), as well as approval from the US sites.
: Written informed consent was obtained from all individual participants and the parents.
