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Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative study

Crossref DOI link: https://doi.org/10.1007/s11136-026-04324-7

Published Online: 2026-06-28

Published Print: 2026-08

Update policy: https://doi.org/10.1007/springer_crossmark_policy

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