Nazari, Jonathan L. https://orcid.org/0000-0002-4758-7588
Kuharic, Maja https://orcid.org/0000-0003-3696-9086
Yu, Justin
Pickard, A. Simon https://orcid.org/0000-0001-5645-7091
Funding for this research was provided by:
EuroQol Research Foundation
Article History
Received: 1 May 2026
Accepted: 1 August 2026
First Online: 7 August 2026
Declarations
Ethics approval and consent to participate: This study was performed in line with the principles of the Declaration of Helsinki. Ethics approval was granted by the Institutional Review Board of the University of Illinois Chicago (IRB# 2025 − 0169).
Consent for publication: The authors affirm that human research participants provided informed consent for publications of study findings.
Informed consent: Informed consent was obtained electronically via the pre-interview survey, and verbal consent was re-confirmed prior to the interview. Participants provided explicit permission for audio recording.
Competing interests: JLN received travel support from the EuroQol group to present this work. MK and ASP are members of the EuroQol Group. JY is supported by the 2024-2026 HEOR fellowship from UIC and Pfizer Inc.