Hull, Leland E. https://orcid.org/0000-0002-5736-6543
Brodney, Suzanne
Regan, Susan
Benson, Olivia
Gallagher, Katherine L.
Marotta, Caylin
Ritchie, Olivia
Shannon, Kristen M.
Verwillow, Anna
Rehm, Heidi L.
Haas, Jennifer S.
Funding for this research was provided by:
Center for the Transformation of Internal Medicine
National Human Genome Research Institute (K08HG012221)
Cystic Fibrosis Foundation (2023A065961)
Article History
Received: 10 July 2025
Accepted: 1 December 2025
First Online: 5 January 2026
Declarations
:
: This study was deemed exempt by the Mass General Brigham Institutional Review Board (Protocol # 2023P000751). A waiver of written informed consent was granted. Survey participants indicated consent at the start of their survey, and referring providers provided verbal consent at the start of their interview.
: Dr. Rehm has received research funding from Illumina and Microsoft and owns stock in Genome Medical. The other authors declare no conflict of interest.