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Authors
Farrugia, Tamsin
Duijts, Saskia F. A.
Cockburn, Christine
Hemming, Laura
Wilson, Carlene
Spelten, Evelien
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Funding
Funding for this research was provided by:
Rare Cancers Australia
La Trobe University
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Article History
Received: 9 June 2025
Accepted: 1 September 2025
First Online: 19 September 2025
Declarations
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: The Supporting People with a Rare Cancer—Information (SPARC-I) study was approved by the Human Ethics Committee of La Trobe University in Bendigo, Victoria, Australia (HEC23234). We confirm that all participants declared their informed consent to participate in a written and verbal form, and that all personal identifiers have been removed so that the persons described are not identifiable and cannot be identified through the details of their stories.
: The authors declare no competing interests.
