Gouttin, Marina Coppens
Perge, Kevin
Calender, Alain
Doye, Emilie
de la Perrière, Aude Brac
Nicolino, Marc
Raverot, Gérald
Villanueva, Carine
Article History
Received: 28 April 2025
Accepted: 3 September 2025
First Online: 20 September 2025
Declarations
:
: The study protocol was approved by the Scientific and Ethical Committee of Hospices Civils de Lyon (February 22, 2024). The database was submitted to the National Data Protection Commission (Commission Nationale de l’Informatique et des Libertés, CNIL) and registered according to the MR004 protocol (22-5106 on 02/02/2024).
: In accordance with current French regulations, parents were informed of the study by postal mail and were given the opportunity to refuse to participate in the study. Written consent was required only for patients with genetic data.
: The authors declare no competing interests.