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Authors
Ali, Shahd Al Haj
Early, Jessica
Farmer, Jennifer M.
Gelbard, Sarah
Corben, Louise
Rance, Gary
Lynch, David R.
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Funding
Funding for this research was provided by:
Friedreich's Ataxia Research Alliance
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Article History
Received: 30 December 2025
Accepted: 8 April 2026
First Online: 24 April 2026
Declarations
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: All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards. The protocol was approved by the Institutional Review Board at the Children’s Hospital of Philadelphia (#2609). All participants, or their legal guardians, provided written informed consent.
: This work was funded by grants to DRL from the Friedreich Ataxia Research Alliance. DRL and LC receive grant funding from FARA unrelated to the present work. JF is an employee of FARA. The remaining authors report no competing interests.
: N/A ( not a clinical trial) though the FACOMS study is registered as NCT03090789, 2017-03-27,.
