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Authors
Toro, Walter https://orcid.org/0000-0002-5369-497X
Yang, Min
Georgieva, Mihaela
Anderson, Annika
LaMarca, Nicole
Patel, Anish
Akbarnejad, Hanane
Dabbous, Omar
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Funding
Funding for this research was provided by:
Novartis Gene Therapies, Inc.
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Article History
Received: 19 July 2023
Accepted: 8 September 2023
First Online: 30 September 2023
Declarations
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: Walter Toro, Anish Patel, and Omar Dabbous are Novartis Gene Therapies, Inc., employees and own Novartis stock or other equities. Nicole LaMarca was an employee of Novartis Gene Therapies, Inc., at the time of the study and analysis. Min Yang, Annika Anderson, and Hanane Akbarnejad are employees of Analysis Group, Inc., which has received consulting fees from Novartis Gene Therapies, Inc., for this research. Mihaela Georgieva was an employee of Analysis Group, Inc., at the time of the study and analysis.
: Data from the 2021 Cure SMA Membership Survey were used for this study. Institutional review board approval was obtained for the membership survey and all data were de-identified prior to analysis.
