Moore, Rebecca
Poulsen, Joshua
Reardon, Lindsay
Samples-Morris, Candice
Simmons, Holly
Ramsey, Keri M. http://orcid.org/0000-0002-4905-1840
Whatley, Meagan L.
Lane, Jane B.
Funding for this research was provided by:
ACADIA Pharmaceuticals
Article History
Received: 1 August 2023
Accepted: 4 January 2024
First Online: 20 February 2024
Declarations
:
: The authors thank all participants in the LAVENDER, LILAC, and DAFFODIL trials and their caregivers. Rebecca Moore, Joshua Poulsen, and Holly Simmons are parents of children who participated in the LAVENDER and LILAC trials and have participated in advisory board meetings sponsored by Acadia Pharmaceuticals Inc. Lindsay Reardon is a parent of a child who participated in the DAFFODIL trial and has participated in advisory board meetings sponsored by Acadia Pharmaceuticals Inc. Candice Samples-Morris is a parent of a child who participated in the LAVENDER and LILAC trials, has participated in advisory board meetings sponsored by Acadia Pharmaceuticals Inc., and has spoken on behalf of Acadia Pharmaceuticals Inc. Keri M. Ramsey and Meagan L. Whatley participated in the LAVENDER, LILAC, and DAFFODIL trials as research nurse coordinators for their study site. Jane B. Lane participated in the LAVENDER, LILAC, and DAFFODIL trials as a research nurse manager for the study site and is a consultant for Acadia Pharmaceuticals Inc.
: This article is based upon caregiver interviews and not on new clinical data with human participants or animals, so it did not require ethics committee approval. All authors met the criteria of the International Committee of Medical Journal Editors for this manuscript, take responsibility for the integrity of the work, and gave their final approval of the final draft.