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Authors
Tutein Nolthenius, Joanne B.
Griffiths, Annabel
Dodd, Olivia
Wyn, Robin
Enstone, Ashley
Whalen, John
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Funding
Funding for this research was provided by:
Pharming Group N.V
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Article History
Received: 26 February 2025
Accepted: 19 May 2025
First Online: 21 June 2025
Declarations
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: At the time of this research, Joanne Tutein Nolthenius and John Whalen were employed by Pharming Group N.V. Annabel Griffiths was employed by Costello Medical and was embedded within Pharming Group N.V. when this work was research was complete. Research execution was delivered by Olivia Dodd, Robin Wyn, and Ashley Enstone who were employed by Adelphi Values PROVE™ at the time this research was commissioned by Pharming Group N.V.
: Ethics exemption for this non-interventional study was sought from Salus IRB and was granted on 1 December 2022 (study ID: #22256–01), as per Code of Federal Regulations 46.104(d)(2(i)) addressing research comprising only educational tests, surveys, interviews and/or observation, where participants remain anonymous. All study participants provided informed consent prior to their involvement.
