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Authors
Turnbull, James
Williams, Betsy
Myrick, Shane
Bascle, Stéphanie https://orcid.org/0000-0002-7480-1439
Daak, Ahmed https://orcid.org/0000-0002-2122-6813
Jones, Kyran
Maher, Joshua https://orcid.org/0000-0003-1889-8931
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Funding
Funding for this research was provided by:
Sanofi
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Article History
Received: 23 September 2025
Accepted: 9 December 2025
First Online: 27 January 2026
Declarations
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: James Turnbull, Betsy Williams, and Shane Myrick are employees of IQVIA, which received funding from Sanofi to conduct this study. Stéphanie Bascle, Ahmed Daak, Kyran Jones, and Joshua Maher are employees or former employees of Sanofi, and may hold stock options in the company. Joshua Maher is currently Director, Patient Centred Outcomes, at Kyowa Kirin. Kyran Jones is currently at Biogen.
: This study was performed in accordance with the Helsinki Declaration of 1964 and its later amendments. The study protocol was approved by the WCG institutional review board (IRB Tracking Number 20216266). All patients provided a completed informed consent form (adolescent patients provided assent to the study, with parents/caregivers providing informed consent) before participating in the interviews, per the inclusion criteria. In the informed consent form, patients were informed that if this study were to be published, no identifiable information would be included.
