Kleiderman, Erika https://orcid.org/0000-0002-0242-2296
Stedman, Ian Norris Kellner
Article History
Received: 6 August 2018
Accepted: 7 July 2019
First Online: 16 August 2019
Compliance with ethics standards
:
: Erika Kleiderman declares that she has no conflict of interest.Ian Stedman is a former member of the Board of Directors of the Canadian Organization for Rare Disorders and a member of the Working Group on Rare Disease Research (Rare Disease International).
: This article does not contain any studies with human participants or animals performed by any of the authors.