Pereira, José D. http://orcid.org/0000-0002-1870-1265
Costa, Catarina http://orcid.org/0000-0003-1692-0402
Santos, Andreia http://orcid.org/0000-0002-8829-444X
Lemos, Marina S. http://orcid.org/0000-0001-5259-7935
Sequeiros, Jorge http://orcid.org/0000-0002-9846-1037
Paneque, Milena http://orcid.org/0000-0002-6535-4315
Mendes, Álvaro http://orcid.org/0000-0002-8766-7646
Funding for this research was provided by:
Universidade do Porto
Article History
Received: 28 March 2024
Accepted: 26 June 2024
First Online: 8 July 2024
Declarations
:
: This study is part of J.D.P.’s doctoral research on the psychological experience of Portuguese families with hATTR-PN and was performed in line with the principles of the Declaration of Helsinki. Approval was granted by the Committee for Ethical and Responsible Conduct of Research of the Institute for Research and Innovation in Health (Appraisal N 24/CECRI/2022).
: Informed consent was obtained from all the participants included in the study.
: The authors declare no competing interests.
: J.D.P., C.C., A.S., M.S.L., J.S., M.P., and Á.M. declare that all data support their published claims and comply with field standards.