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Supporting the continuous development and use of a patient partnership framework in European rare disease networks (ERNs): a scoping review of frameworks in the scientific literature

Crossref DOI link: https://doi.org/10.1007/s12687-024-00763-2

Published Online: 2024-12-21

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Spivack, Olivia K. C. https://orcid.org/0000-0002-8627-1383
Klein Haneveld, Mirthe J. https://orcid.org/0000-0002-0453-2608
Louisse, Simone https://orcid.org/0000-0003-0272-9877
Slater, Graham

Hernando, Inés
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Text and Data Mining valid from 2024-12-21

Version of Record valid from 2024-12-21
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Article History

Received: 7 August 2024

Accepted: 9 December 2024

First Online: 21 December 2024

Declarations

:

: This article does not contain any studies with human or animal subjects performed by the any of the authors.

: The authors declare no competing interests.

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