Goddard, Emily J. https://orcid.org/0000-0002-1480-040X
Haughton, James M. https://orcid.org/0000-0003-4089-5809
Lucas, James E. https://orcid.org/0000-0002-9093-0134
Barlow, Sophie G. https://orcid.org/0000-0001-5604-1360
Fitzgerald, Timothy P. https://orcid.org/0000-0003-3441-1708
Litvintchouk, Alexander M. https://orcid.org/0009-0003-5492-1040
Wu, David https://orcid.org/0009-0008-4759-7955
Funding for this research was provided by:
Johnson & Johnson Innovative Medicine United States
Article History
Received: 13 October 2024
Accepted: 30 January 2025
First Online: 17 February 2025
Declarations
:
: Emily J. Goddard, James M. Haughton, James E. Lucas and Sophie G. Barlow are employees of Adelphi Real World, Bollington, UK. David Wu was an employee of Johnson and Johnson Innovative Medicine and held stock in Johnson & Johnson at the time of the study. At the time of publication, David Wu was no longer an employee of Johnson and Johnson Innovative Medicine and had no other affiliation. Alexander M. Litvintchouk and Timothy P. Fitzgerald are employees of Johnson and Johnson Innovative Medicine and hold stock in Johnson & Johnson.
: Using a checkbox, patients provided informed consent to take part in the survey. Data were collected in such a way that patients and physicians could not be identified directly. Data collection was undertaken in line with European Pharmaceutical Marketing Research Association (EphMRA) guidelines. Exemption from ethics approval was sought and granted from Pearl IRB. Each survey was performed in full accordance with relevant legislation at the time of data collection, including the US Health Insurance Portability and Accountability Act 1996 [], Health Information Technology for Economic and Clinical Health Act legislation [], and the Helsinki Declaration of 1964 and subsequent revisions. All authors from Johnson & Johnson Innovative Medicine United States had permission to access the Adelphi Real World PsO DSP dataset through the subscription purchased by Johnson & Johnson Innovative Medicine United States. All other authors are employees of Adelphi Real World, the dataset owner.