De Bleecker, Jan L. http://orcid.org/0000-0002-1328-1812
Claeys, Kristl G. http://orcid.org/0000-0001-9937-443X
Delstanche, Stéphanie http://orcid.org/0000-0003-4481-579X
Van Parys, Vinciane
Baets, Jonathan http://orcid.org/0000-0001-8295-5385
Tilleux, Sébastien http://orcid.org/0000-0002-0094-5712
Remiche, Gauthier http://orcid.org/0000-0002-4882-3570
Funding for this research was provided by:
Alnylam Pharmaceuticals
Article History
Received: 15 March 2022
Accepted: 16 January 2023
First Online: 24 February 2023
Declarations
:
: <i>Jan L. De Bleecker:</i> compensation for scientific meetings between 2008 and 2021 from Sanofi-Genzyme, CSL Behring, Pfizer, Alnylam, Biogen, Roche and Alexion; <i>Kristl G. Claeys</i>: advisory board honoraria and research grant from Alnylam, Biogen, CSL Behring, Sanofi-Genzyme; travel reimbursement from Sanofi-Genzyme; <i>Stéphanie Delstanche</i>: travel and advisory boards compensations from Alnylam, Pfizer, Biogen, Roche, argenx, Sanofi-Genzyme and CAF-DCF; <i>Vinciane Van Parys</i>: no conflict of interest; <i>Jonathan Baets</i>: travel and advisory board compensations from Sanofi, CSL Behring, Alnylam, Roche and Biogen; <i>Gauthier Remiche</i>: compensation for scientific meetings between 2008 and 2021 (Genzyme-Sanofi, CSL Behring, Santhera, Pfizer) and for various consulting missions between 2009 and 2021 (Genzyme-Sanofi, CSL Behring, Alnylam, Alexion and AFMPS), on site/local Principal Investigator (PI) for clinical trial from 2016 (Genzyme-Sanofi, Momenta, Alnylam), member of the INAMI/RIZIV commission for metabolic diseases (Pompe and Fabry), consulting member for the Belgian Society of Medical Oncology (BSMO) concerning neurologic complication of immunotherapies (2018–2021).
: According to Belgian law, this retrospective data survey without patient enrolment does not require approval by a medical EC or an Institutional Review Board. In the context of a scientific survey, a waiver for informed consent was required by the medical ECs of all participating centers, as only aggregated data were returned for analysis.
: Informed consent was obtained from all individual participants included in the study.