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Article History

Received: 14 August 2024

Accepted: 29 October 2024

First Online: 4 December 2024

Declarations

:

: Petr Hájek and Jacek Cudny are employees of UCB Pharma. Katarína Breciková and Aleš Tichopád are employees of CEEOR company, which was contracted by UCB Pharma to conduct the analyses. Stanislav Voháňka, Magda Horáková, Jana Junkerová, Michala Jakubíková, Jiří Piťha, Michaela Týblová and Daniela Vlažná claim they have no conflict of interest. The technical and analytical management of the register is provided by the Institute of Biostatistics and Analyses, s.r.o., which is also the processor of personal data within the register. CEEOR s.r.o. and IBA s.r.o. are commercial research organisations conducting observational studies. The following study centers participated on collection of data used in this work: University Hospital Brno—Department of Neurology, University Hospital Prague- Motol—Department of Child Neurology, University Hospital Ostrava—Department of Child Neurology, University Hospital Prague- Motol—Department of Neurology of the 2. Med. Faculty, University Hospital Ostrava—Department of Child Neurology, University Hospital Ostrava—Department of Neurology, University Hospital Plzeň—Department of Neurology, Thomayer University Hospital Prague—Department of Neurology, University Hospital Hradec Králové—Department of Neurology, University Hospital Prague- Královské Vinohrady—Department of Neurology, Hospital of the Pardubice region—Department of Neurology, Masaryk’s hospital in Ústí nad Labem—Neurology department, Hospital České Budějovice—Neurology department, Hospital in Teplice—Neurology department, General University Hospital Prague—Department of Neurology. University Hospital Brno and University Hospital Prague- Motol are members of the European Reference Network for Neuromuscular Diseases- Project ID 870177.

: The study was approved by the Ethics Committee of the University Hospital in Brno under the number 06-160518. All participants signed an informed consent. We confirm that this study was performed in accordance with the Helsinki Declaration of 1964 and its later amendments. All authors had permission to use MyReg register.