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Authors
Buchholz, Maresa https://orcid.org/0000-0002-4486-8632
Pfaff, Michelle
Iskandar, Audrey
Reetz, Kathrin
Schulz, Jörg B.
Grobe-Einsler, Marcus
Klockgether, Thomas
Michalowsky, Bernhard
,
Boesch, Sylvia
Nachbauer, Wolfgang
Eigentler, Andreas
Indelicato, Elisabetta
Amprosi, Matthias
Rai, Myriam
Pandolfo, Massimo
Mariotti, Caterina
Nanetti, Lorenzo
Gellera, Cinzia
Mongelli, Alessia
Castaldo, Anna
Fichera, Mario
Bertini, Enrico
Vasco, Gessica
Durr, Alexandra
Ewenczyk, Claire
Biet, Marie
Monin, Marie Lorraine
Holtbernd, Florian
Brcina, Nikolina
Hohenfeld, Christian
Didszun, Claire
Dogan, Imis
Giordano, Ilaria
Klopstock, Thomas
Stendel, Claudia
Radelfahr, Florentine
Bischoff, Almut T.
Schöls, Ludger
Hayer, Stefanie N.
Koutsis, Georgios
Breza, Marianthi
Palau, Francesc
O’Callaghan, Mar
de Rivera Garrido, Francisco Javier Rodríguez
Rummey, Christian
Giunti, Paola
Parkinson, Michael H.
Thomas-Black, Gilbert
Manso, Katarina
Solanky, Nita
Labrum, Robyn
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Clinical Trials BETA
Clinical trials referenced in this document:
nct02069509 at ClinicalTrials.govDocuments that mention this clinical trial
Friedreich and dominant ataxias: quantitative differences in cerebellar dysfunction measurements
https://doi.org/10.1136/jnnp-2017-316964
Health-Related Quality of Life in Patients with Friedreich Ataxia Using Mobility Assistive Technologies: Limited Fit of the EQ-5D-3L Mobility Dimension
https://doi.org/10.1007/s40120-024-00694-7
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Article History
Received: 21 October 2024
Accepted: 5 December 2024
First Online: 30 December 2024
Declarations
:
: All authors declare that they have no competing interests to declare that are relevant to the content of this article. Michelle Pfaff started a Master Program during the preparation of the manuscript. Therefore, her affiliation changed into School of Public Health, San Diego State University, San Diego, CA, USA. MGE is member of the European Reference Network – Rare Neurological Diseases (ERN‐RND).
: EFACTS was approved by the ethics committees of the participating centres and have been performed in accordance with the ethical standards laid down in the 1964 Declaration of Helsinki and its later amendments. Written informed consent was obtained from all study participants of EFACTS.
