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Article History

Received: 4 October 2024

Accepted: 1 May 2025

First Online: 2 June 2025

Declarations

:

: Joohi Jimenez-Shahed has received consulting fees from Medtronic, Abbvie, Bracket, AlphaOmega, Teva, Praxis, RegenXBio, Kyowa Kirin, Amneal, and TreeFrog. She has received research funding from Annovis and Sage. She serves on the data safety monitoring board for BlueRock Therapeutics and Emalex and on an advisory board for PhotoPharmics. Aristide Merola has received grant support from the NIH (KL2 TR001426). He has received speaker honoraria or advisory board honoraria from CSL Behring, AbbVie, Abbott, Medtronic, Theravance, and Cynapsus Therapeutics. He has received grant support from Lundbeck and AbbVie. Irene A. Malaty has participated in research funded by AbbVie, Emalex, Praxis, Neuroderm, Prilenia, Revance, and Sage but has no owner interest in any pharmaceutical company. She has received consulting fees from Abbvie, travel compensation or honoraria from Cleveland Clinic, Parkinson Foundation, Tourette Association, Medscape, and royalties from Robert Rose Publishers. Jean-Philippe Azulay has received compensation for consultancy and speaker-related activities from UCB, AbbVie, Kyowa Kirin, Zambon, Roche HAC Pharma, and Allergan. Alexander Gillespie is an employee of Adelphi Real World, a consulting company that was hired by AbbVie Inc., to perform analyses on the Adelphi Disease Specific Programme database. Angelo Antonini has received compensation for consultancy and speaker-related activities from UCB, Boehringer Ingelheim, Britannia, AbbVie, Kyowa Kirin, Zambon, Bial, Neuroderm, Theravance Biopharma, and Roche. He receives research support from Chiesi Pharmaceuticals, Lundbeck, Bial, Horizon2020 Grant 825785, Horizon2020 Grant 101016902, Ministry of Education University and Research (MIUR) Grant ARS01_01081, and Cariparo Foundation. He serves as consultant for Boehringer–Ingelheim for legal cases on pathological gambling. Aditi Kharat, Lakshmi P. Kandukuri, Ali Alobaidi, Pavnit Kukreja, Jorge Zamudio, Ashwini Parab, and Connie H. Yan are employees of AbbVie and may own stocks/shares in the company.

: Data collection was undertaken in line with European Pharmaceutical Marketing Research Association guidelines and as such it does not require ethics committee approval. Each survey was performed in full accordance with relevant legislation at the time of data collection, including the US Health Insurance Portability and Accountability Act 1996 and Health Information Technology for Economic and Clinical Health Act legislation. All data were fully de-identified prior to receipt by Adelphi Real World. The respondents provided informed consent for use of their anonymized and aggregated data for research and publication in scientific journals.