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Authors
Mathur, Soania https://orcid.org/0000-0002-6224-7573
de Wit, Harold
Jones, Becky https://orcid.org/0000-0002-3924-0269
Stevens, Evelyn
Costa, Angels https://orcid.org/0009-0007-7926-1543
Klein, Alexander
Trenam, Kate
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Article History
Received: 28 November 2025
Accepted: 30 March 2026
First Online: 28 April 2026
Declarations
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: Soania Mathur has nothing to disclose. Harold de Wit has nothing to disclose. Becky Jones is an employee of Parkinson’s UK. Evelyn Stevens is an employee of the Parkinson’s Foundation. Angels Costa is an employee of Novartis. Alexander Klein and Kate Trenam are employees and shareholders of UCB.
: Based on the European Pharmaceutical Market Research Association Code of Conduct (Sections 1.1 and 1.2), this study can be defined as market research. Therefore, neither Ethics Committee nor Independent Review Board approval (Section 1.3) was required. None of the participants received any honoraria for their time or contributions to the research, and consent to publish the findings was received by the patient advocacy groups on behalf of the participants.
